I know I know who would have thought it? Now I’d like to apologise to those neurologists out there who still actually give a crap about their patients and don’t speak to everyone like they just been dragged in on the bottom of their shoe because I am aware not everyone is the same.
For the past 5ish years I have completely avoided neurologists due to having a bit of a love/hate relationship. Every now and then you find a diamond in the rough but the majority are what I can only describe as arrogant arseholes. Although they are brain surgeons so I guess that entitles them to some sense of arrogance.
What’s the deal with your attitude to neurologists?
The thing is I haven’t exactly had the best experiences of neurologists in my time of seeing them. The very first neurologist I had was a lovely man called Dr Newman who was very thorough , made sure I fully understood what was happening with me and my diagnosis.
Then I moved to Wales for a period of time and it just kind of went down hill from there. For some reason they just seem to have a whole heap of snootiness about them and it’s almost like they can’t actually be arsed to listen to you let alone help you.
As I mentioned earlier, I have completely avoided neurologists after an experience a few years ago that made me vow to just suck it up after an argument ensued following him questioning how many pain killers I had between January and March.
Now when I said he questioned me I don’t mean he asked, I answered and that was the end of the conversation. What actually happened was he asked, I answered. He didn’t like my answer so continued to hound me asking over and over. This resulted in me losing my shit and telling him he could ask me as many times as he liked and my answer would remain the same I didn’t bloody know! I’m not into the habit of counting every single tablet for 3 months and making a note of it. To cut a long story short he didn’t think it would be good for us to have any more appointments …..
The good doctor
No I don’t mean the amazing TV series about the autistic surgeon. Instead I mean the amazing neurologist I saw last Sunday. The prospect of seeing a neurologist didn’t fill me with joy but I was aware I didn’t really have a choice.
My eyesight and my health has deteriorated very rapidly since November to the point it has become quite scary now and I’m concerned about my future but I will reveal more about these things as the blogs progress and I find more things out about what’s happening.
Entering the hospital
Walking through those doors was not something I was excited about doing. I just wanted some help with recent things and wasn’t sure I was going to get it but as it turns out I had an amazing lady neurologist called Dr Ari.
From the second I entered her room she listened to everything I had to say. Questioned me in a way that was of understanding and empathy. She genuinely sounded like she wanted to help me to get better.
Ordering lots of different things from a lumbar puncture to a CTV scan I felt for the first time since that very first diagnosis at the age of 19 ( approximately 4000 years ago) somebody cared enough to listen and give me actual helpful advice.
It’s not all roses and butterflies
Don’t get me wrong I’m not impressed that I’m no longer allowed coffee, chocolate or fizzy drinks. Actually I’m not allowed anything remotely nice in my life at the moment but at least she is helping
So here’s to Dr Ari and her long journey of helping me to get better. Fingers crossed we remain with a good patient/doctor relationship. Get to the bottom of all this and kick ass 🙂
Thanks for reading